4B – Study Challenges: IRB, Biologics, & HIPAA

Study Challenges: IRB, Biologics, & HIPAA
Presentation & Discussion
4B - Field


Time/Date
3:15pm-4:30pm on Monday, 4/20/2026

Facilitator
Kelly Elver, University of Wisconsin Survey Center

Gaining respondent trust, cooperation, and consent when collecting biologic-specimens in vulnerable populations. In addition, presenters will discuss their experience engaging with IRBs on these types of protocols.

    Presentations
  • Navigating IRB Requirements: To Provide or not to Provide Test Results to Participants? 
    • Izzie Arrizza, Johns Hopkins University (presenter)
    • Jaana Myllyluoma, Johns Hopkins University (presenter)
  • Implementation and Outcomes of Consent for HIPAA Data Linkage in a Mixed-Mode Longitudinal Study of Army Servicemembers and Veterans
    • Ryan Yoder, UM – Survey Research Operations, Survey Research Center (presenter)
    • Jeffrey Albrecht, UM – Survey Research Operations, Survey Research Center
    • Meredith House, UM – Survey Research Operations, Survey Research Center
  • Last-Chance Strategies for Collecting Biospecimens from Older Adult Populations
    • Chelsea Burns, NORC at the University of Chicago (presenter)
    • Kriston Koepp, NORC at the University of Chicago (presenter)
  • Findings from the NSHAP Blood Draw Pilot
    • Arohi Deshpande, NORC at the University of Chicago (presenter)
    • Journie Raulston, NORC at the University of Chicago (presenter)
    • Hanvit Park, NORC at the University of Chicago
    • Sara Walsh, NORC at the University of Chicago