Presentation & Discussion
Time/Date
3:15pm-4:30pm on Monday, 4/20/2026
Facilitator
Kelly Elver, University of Wisconsin Survey Center
Gaining respondent trust, cooperation, and consent when collecting biologic-specimens in vulnerable populations. In addition, presenters will discuss their experience engaging with IRBs on these types of protocols.
- Presentations
- Navigating IRB Requirements:Â To Provide or not to Provide Test Results to Participants?Â
- Izzie Arrizza, Johns Hopkins University (presenter)
- Jaana Myllyluoma, Johns Hopkins University (presenter)
- Implementation and Outcomes of Consent for HIPAA Data Linkage in a Mixed-Mode Longitudinal Study of Army Servicemembers and Veterans
- Ryan Yoder, UM – Survey Research Operations, Survey Research Center (presenter)
- Jeffrey Albrecht, UM – Survey Research Operations, Survey Research Center
- Meredith House, UM – Survey Research Operations, Survey Research Center
- Last-Chance Strategies for Collecting Biospecimens from Older Adult Populations
- Chelsea Burns, NORC at the University of Chicago (presenter)
- Kriston Koepp, NORC at the University of Chicago (presenter)
- Findings from the NSHAP Blood Draw Pilot
- Arohi Deshpande, NORC at the University of Chicago (presenter)
- Journie Raulston, NORC at the University of Chicago (presenter)
- Hanvit Park, NORC at the University of Chicago
- Sara Walsh, NORC at the University of Chicago

